Today we have lots to be thankful for. God is so good and faithful and is continuing to guide us and little by little bring healing to my body. My mom and dad gave me a bookmark with a verse on it that sums up my heart right now –
“A joyful heart is good medicine.” Proverbs 17:22”
And I have many things right now that are making my heart joyful. First of all, Jacob and the kids arrived safely and we are all so happy to be together. When they arrived, Sophia and Benjamin had to go to the pediatrician here because Sophia had a rash and Benja had an ear infection, but they are now doing great. Jacob is continuing to have to do homeschooling for the three of them, but we have been able to add going to the county park for them to ride bikes as PE and of course Benja is playing golf!! We also all went to the aquarium on Saturday with Jacob’s parents – little added science lesson! I was able to make it with the help of my wheelchair. So everyone is settling into a routine here at my parents’ house. 🙂
As far as my health progress goes….we are still working on getting my cpk and aldolase down into normal range. We have made progress, but I am still not where I need to be, so I am still having discomfort. I am able to walk now though, all be it slowly, and if it is going to be a large amount of walking, like when we went to the aquarium, I have to use a wheelchair. I have been able to get to our target amount of the immune suppressant and I have begun to successfully come down some on my dose of prednisone. I will meet again with Dr. Gilkeson next Wed 3.10.10 to decide if we are going to need to add another medication. I am still wearing the heart monitor and do not have any news to report on that. I am praying everyday that I will get a phone call from my cardiologist and that she will tell me that I can take it off and we can know what the issues are with my heart, but so far, I am still waiting. Today, I had to go to GYN for an extensive check to make sure that ovarian or breast cancer is not what triggered the gene in my body that caused this disease to come to life in my body. We may not ever know the environmental trigger that caused it, but we need to make sure that it was not one of these types of cancers. And in women with this, these types of cancers are common triggers. Tomorrow, Wed. 3.3.10, I will have a mammogram and then on the 16th I will have ultrasound of my ovaries and then on that same day I will meet back with my new GYN here and discuss if we need to do any more checking or testing. Next week on 3.9.10 I will go to physical therapy for the first time for stretching and massage. I will not be able to work on regaining any strength until we get all of this under control, but we are hoping this will help me be more comfortable and in less pain.
Specific ways to pray
1. That my cpk and aldolase would come back into normal range.
2. That my cardiologist would get to see what she needs to see from this heart monitor so that we can make decisions regarding my heart health.
3. That all cancer tests would come back negative, but if there is something there that we need to be aware of, that God would reveal it in the testing that we are doing so that it can be addressed.
4. That physical therapy would bring me some relief and that I would continue to heal and get stronger day by day.
5. That everywhere we go we would continue to share God’s light, love, grace and shine for Him.
I know that God is using this time here in Charleston for His glory. I have seen Him make changes in me and I feel closer to Him now than I have ever been. I have watched Him work and move in situations where only He could be responsible for the things that are going on around us. I can only be thankful for this situation and pray that I would bring Him glory through each stage of this. I thank you all for your prayers and encouragement. They are so special to us and make all the difference. We need them and ask that you continue to pray for us.
To God Be the GloryText: Fanny J. Crosby (1820-1915)
To God be the glory, great things He hathdone;
So loved He the world that He gave us His Son,
Who yielded His life, an atonement for sin,
And opened the lifegate, that all may go in.
O perfect redemption, the purchase of blood,
To every believer, the promise of God;
The vilest offender who truly believes,
That moment from Jesus a pardon receives.
Great things He hath taught us, great things He hath done,
And great our rejoicing through Jesus the Son;
But purer, and higher, and greater will be
Our wonder, our transport, when Jesus we see!
Praise the Lord, praise the Lord,
Let the earth hear His voice!
Praise the Lord, praise the Lord,
Let the people rejoice!
O come to the Father, through Jesus the Son,
And give Him the glory, great things He hath done!